The MalariaGEN Community
The MalariaGEN community is made up of more than 100 researchers in over 20 countries, working together on projects that require sharing and integration of large amounts of data. Our work involves clinical research, epidemiology, genetics, statistics, parasitology, entomology, immunology, computer science and ethics.
How we work together
MalariaGEN brings together the work of many different partner studies in malaria-endemic regions around the world, each of which is led by an independent investigator and has its own scientific objectives. MalariaGEN adds value to partner studies by providing access to genotyping and sequencing technologies, and by providing a framework for sharing and integrating data in consortial projects and community projects.
Training and capacity building
MalariaGEN provides training and support in genetic data analysis for researchers at partner institutions in malaria-endemic countries. We do this through a data bursary scheme and through an active programme of scientific meetings and training workshops. These activities are supported by the MalariaGEN resource centre which has a team of experts in statistics, population genetics and bioinformatics at the Sanger Institute, Oxford University, the London School of Hygiene and Tropical Medicine, and Mahidol University in Bangkok.
Ethics and governance
There are many practical and ethical challenges involved in sharing data across a global network comprising investigators and institutions with great disparities in funding and infrastructure. The MalariaGEN community has been working to develop transparent procedures for ethics and governance. We have a governance committee and an independent data access committee, and network policies have been defined for data sharing and data access.