Ethics for human genomics

Ethics icon

Ethics for collaborative genomics research

From the start, we've worked with the Ethox Centre at the University of Oxford to develop ethical frameworks for pursuing large-scale genomics research, particularly in the context of collaborations between researchers working in high- and low- or middle-income settings.

A highly-engaged programme of ethics activities

Our ethics team worked closely with the MalariaGEN Resource Centre and our research partners to:

  • Develop network-wide policies on ethical issues such as data-sharing, particularly for our human GWAS data
  • Provide ethics support, training and advice
  • Undertake research and facilitate consultations around important ethical issues

A range of ethical considerations, at all stages of our research

Our ethics work involved collaboratively identifying and addressing a range of important ethical issues that relate to the way our research is designed and conducted; the way data and research outcomes are analysed, shared and reported; and also the way our projects operate.

These ethical issues include:

Ethics and capacity building

Ethics of collaboration

Data sharing and open access

Use of ethnicity data

Informed consent for genomic research

Sharing aggregate genomic results with participating communities