Ethics for collaborative genomics research
From the start, we've worked with the Ethox Centre at the University of Oxford to develop ethical frameworks for pursuing large-scale genomics research, particularly in the context of collaborations between researchers working in high- and low- or middle-income settings.
A highly-engaged programme of ethics activities
Our ethics team worked closely with the MalariaGEN Resource Centre and our research partners to:
- Develop network-wide policies on ethical issues such as data-sharing, particularly for our human GWAS data
- Provide ethics support, training and advice
- Undertake research and facilitate consultations around important ethical issues
A range of ethical considerations, at all stages of our research
Our ethics work involved collaboratively identifying and addressing a range of important ethical issues that relate to the way our research is designed and conducted; the way data and research outcomes are analysed, shared and reported; and also the way our projects operate.
These ethical issues include:
Informed consent for genomic research
Sharing aggregate genomic results with participating communities